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Auflistung nach Schlagwort "Qualitative research"

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Conceptualization and implementation of the central information portal on rare diseases: Protocol for a qualitative study

Litzkendorf, Svenja; Hartz, Tobias; Göbel, Jens; Storf, Holger; Pauer, Frédéric; Babac, Ana; Lührs, Verena; Bruckner-Tuderman, Leena; Schauer, Franziska; Schmidtke, Jörg; Biehl, Lisa; Wagner, Thomas O.F.; Schulenburg, Johann-Matthias Graf von der; Frank, Martin (Toronto : JMIR Publications, 2018)

Background: Recently, public and political interest has focused on people living with rare diseases and their health concerns. Due to the large number of different types of rare diseases and the sizable number of patients, ...
Head in the clouds, feet on the ground: how transdisciplinary learning can foster transformative change—insights from a summer school

Atienza Casas, Sara; Calicis, Camille; Candiago, Sebastian; Dendoncker, Nicolas; Desair, Jomme; Fickel, Thomas; Finne, Eirik Aasmo; Frison, Christine; Haensel, Maria; Hinsch, Malte; Kulfan, Tyler; Kumagai, Joy A.; Mialyk, Oleksandr; Nawrath, Maximilian; Nevzati, Fiona; Washbourne, Carla; Wübbelmann, Thea (Dordrecht : Springer Netherlands, 2023)

There is a pressing need for transformative change, with a vision of long-term human well-being within planetary boundaries. The lack of progress—despite increasing awareness and action—illustrates how challenging it is ...
How to sort out uncategorisable documents for interpretive social science? On limits of currently employed text mining techniques

Philipps, Axel (València : Universitat Politècnica València, 2018)

Current text mining applications statistically work on the basis of linguistic models and theories and certain parameter settings. This enables researchers to classify, group and rank a large textual corpus – a useful ...
Integrating patient perspectives in medical decision-making: a qualitative interview study examining potentials within the rare disease information exchange process in practice

Babac, Ana; von Friedrichs, Verena; Litzkendorf, Svenja; Zeidler, Jan; Damm, Kathrin; Schulenburg, Johann-Matthias Graf von der (London : BioMed Central, 2019)

Background Many European countries have recently implemented national rare disease plans. Although the network is strengthening, especially on the macro and meso levels, patients still go a long way through healthcare ...
Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study

Litzkendorf, Svenja; Frank, Martin; Babac, Ana; Rosenfeldt, Daniel; Schauer, Franziska; Hartz, Tobias; Schulenburg, Johann-Matthias Graf von der (London : BioMed Central, 2020)

Background: Finding reliable information on one of more than 7000 rare diseases is a major challenge for those affected. Since rare diseases are defined only by the prevalence criterion, a multitude of heterogeneous ...

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Auflistung nach Schlagwort "Qualitative research"

Auflistung nach Schlagwort "Qualitative research"

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